Her older sister, Claudette, expressed concern over Céline’s condition, revealing that she “doesn’t have control over her muscles.” Despite her unwavering work ethic and desire to return to the stage, the progressive and incurable nature of the syndrome poses significant challenges. Claudette emphasized the limited research into this rare condition due to its rarity, affecting only one in a million cases.

Stiff person syndrome can severely impact mobility, sometimes turning sufferers into ‘human statues.’ While rumors circulated about Céline being wheelchair-bound, Claudette refuted them, emphasizing her determination and joy for life. Céline remains committed to her comeback plans, following her doctors’ care plan in Denver.

Every day, I have to admit, It’s been a struggle,” she says as shots show her getting help with her mobility.

“This last couple of years has been such a challenge for me, the journey from discovering my condition to learning how to live with and manage it, but not to let it define me.”

“As the road to resuming my performing career continues, I have [realised] how much I have missed being able to see my fans. During this absence, I decided I wanted to document this part of my life, to try to raise awareness of this little-known condition, to help others who share this diagnosis,” she said ahead of its release on Amazon.